I FINALLY had a correct diagnosis. Occipital Neuralgia. It’s funny how not even 1 minute of my pain doctor sitting in the room with me I had a diagnosis and we were on our way to a treatment plan. Since I had already been through all of the medicines that did not work, it was now time to look at alternative options.
First we went through nerve blocks. AHHHH Relief! Oh you only last for a week…. Well that worked so now what is next? Radiofrequency Ablations. Ok, a day of hell for 1-3 months of relief, I’ll take it. Problem being my C1-2 were causing lots of issues for me. My pain doctor at home decided it was best to sent me out of town to seen another doctor who specializes in this type of treatment. So I traveled 3 hours away to meet with another more specialized pain specialist that completed the Radiofrequency Ablations on my C1-2 area. He completed this twice for me and then decided it was best that I see a neurosurgeon.
I was given the option of a neurostimulator or to sever my occipital nerve completely. After lots of research and discussing with my family, we decided the best choice for me was to have my nerve severed. On February 26, 2009, I had my occipital nerve severed. Just a little over 3 years from the day hell started, little did I know that 6 months later I would be completely pain free.